The “Partners for Better Health” Program is a PCORI-funded project to increase community engagement in advancing a prostate cancer screeening research agenda. Detroit HealthLink is lending technical assistance to this program.
BACKGROUND
Prostate cancer (PC) is the most commonly diagnosed cancer in men. African Americans (AA) have the highest incidence and mortality of PC among all racial groups in US. The prostate specific antigen (PSA) screening for early detection of PC is highly controversial because it may cause more harm than benefit.
As a result, most expert group’s recommend shared decision making (SDM). Although primary care physicians (PCPs) feel that shared decision making is appropriate regarding PSA screening, there are numerous barriers for this conversation to occur during real world clinical practices. Lack of time, difficulty eliciting patients’ values and preferences, and a perceived inability to adequately inform patients about complex decisions are some of the barriers to shared decision making from primary care physician perspective. Numerous pervious decision aids for PSA screening for patients have been reviewed, but there are few studies that involved both clinician and patients in the shared decision making in PSA screening. Thus, we propose to engage our patients, PCPs, and other stakeholders’ (e.g. family, community payers) in cultivation strong relationship among key stakeholders’ and researchers in other to identify research questions and goals they consider truly important.
PURPOSE
The purpose of this collaborative working group PBPH is to engage our community to actively influence research ideas and priorities that matter most to them( i.e.community).
Stakeholder Membership Requirements/ Participation
Membership in our PBPH collaboration is voluntary. The Partners For Better Prostate Health collaborative meets on a monthly basis, members must attend at least 2/3 meeting throughout the year to maintain their membership.
MEMBERS AND PARTICIPATING GROUPS
Jinping Xu, MD, MS – Project Lead
Voncile Brown-Miller- Project Coordinator/Program Specialist
Dwight Wilson- Prostate Cancer Survivor
Aarif Bashir- Prostate Cancer Survivor
Gene Odom- Prostate Cancer Survivor
Horace Miller -Community Advocate
Charles Green- Community Advocate
Mark Smith- Community Advocate
Joyce Driver- Community Advocate
Delores Walker- Community Advocate
Mark Smith-Community Advocate
Clare Carlisle-Community Advocate
Lynette Smith- Community Advocate
Margaret Holmes-Rovner, MSU Researcher- Consultant
Dr. James Blessman – Primary Care Physican
Dr. Joe Thomas- Physician
Dr. Lilia Peress- Physician
Dr. James Blessman- Consultant
Dr. Hayley Thompson – Consultant/ Detroit HealthLink
Dr. Nathan Johnson, Pastor Tabernacle Missionary Baptist Church
Alberta Miller- Nurse- Mt. Zion Missionary Baptist Church
William Luse- President 100 Black Men of Metro Detroit
Dana Brown- Molina Health Care
Michael Mellor- Molina Health Care